The Power of Us Community Survey 2026 | The Olandus Foundation

SECTION 1: ABOUT YOU

1. What is your age?

2. What is your gender identity?

3. What is your race/ethnicity? (Select all that apply)

American Indian or Alaska Native Asian Black or African American Hispanic or Latino Middle Eastern or North African Native Hawaiian or Pacific Islander White Prefer not to say Other:

4. What state or U.S. territory do you live in?

5. What is your zip code?

6. What is your annual household income?

7. What is your highest level of education?

Less than high school High school diploma or GED Some college / Associate degree Bachelor's degree Graduate or professional degree Prefer not to say

8. What best describes your current health insurance status?

SECTION 2: YOUR RELATIONSHIP TO CANCER

9. What best describes your relationship to cancer? (Select all that apply)

I am currently in treatment I am a cancer survivor (completed treatment) I am in active surveillance / watch and wait I am a caregiver or care partner for a cancer patient I lost a loved one to cancer I have not been directly affected by cancer

10. What type of cancer were you or your loved one diagnosed with?

11. What stage was the cancer at diagnosis?

12. When were you or your loved one first diagnosed?

13. What types of treatment have you or your loved one received? (Select all that apply)

SECTION 3: DIAGNOSIS AND CARE EXPERIENCE

14. How satisfied were you with the communication from your medical team at diagnosis?

15. Did you feel your diagnosis was explained in a way you could understand?

Yes, completely Somewhat No, I was confused I relied on my own research

16. Did you seek a second opinion after your initial diagnosis?

Yes No I wanted to but could not (cost, access, time)

17. How would you rate the overall quality of cancer care you received?

Excellent Good Fair Poor

18. Did your medical team respect your preferences and values during treatment decisions?

19. Did you experience any of the following during your care? (Select all that apply)

Felt dismissed or not taken seriously by a provider Felt my race, gender, or background affected my care Was not given enough time to ask questions Received conflicting information from different providers Had difficulty accessing a specialist Experienced language or communication barriers None of the above

SECTION 4: CLINICAL TRIALS

20. Before this survey, how aware were you of clinical trials as a treatment option?

Very aware Somewhat aware Not aware at all

21. Were you ever offered the opportunity to participate in a clinical trial?

Yes, and I participated Yes, but I declined No, I was never offered one I asked about one, but was told I was not eligible

22. If you did not participate, what were your reasons? (Select all that apply)

23. Do you believe clinical trials are equally accessible to all communities?

Yes No Unsure

24. What would make you more likely to consider a clinical trial? (Select all that apply)

A trusted doctor recommending it More information in my own language Knowing the trial includes people who look like me Help with transportation and logistics Financial support for time off work A patient navigator to walk me through the process Hearing from someone who completed a trial Nothing. I would not consider a trial.

SECTION 5: FINANCIAL IMPACT OF CANCER

25. How would you describe the financial impact of cancer on your household?

No significant impact Moderate impact (manageable but stressful) Severe impact (caused major hardship) Devastating (led to debt, bankruptcy, or loss of housing)

26. Did you experience any of the following financial challenges? (Select all that apply)

27. Were you connected to any financial assistance resources during treatment?

Yes, and they were helpful Yes, but they were not enough No, I was not aware of any No, I did not qualify

28. How concerned are you about the long-term financial effects of your cancer experience?

SECTION 6: MENTAL HEALTH AND EMOTIONAL WELL-BEING

29. How would you rate your overall emotional well-being during or after treatment?

Excellent Good Fair Poor

30. Did you experience any of the following? (Select all that apply)

31. Were you offered mental health support as part of your cancer care?

Yes, and I used it Yes, but I did not use it No, it was never offered I sought it on my own

32. What type of emotional support would be most valuable to you? (Select all that apply)

One-on-one counseling with a licensed therapist Support groups (in-person) Support groups (virtual) Peer mentorship from another survivor Spiritual or faith-based support Online community or forum Help for my caregiver or family members I do not need emotional support at this time

33. Do you feel the emotional impact of cancer is taken seriously by the medical community?

SECTION 7: ACCESS AND HEALTH EQUITY

34. How far do you travel (one way) to receive cancer care?

35. Have you faced barriers to accessing cancer care? (Select all that apply)

36. Do you feel your race, gender, income, or zip code has affected the quality of cancer care you received?

Yes, significantly Somewhat No Unsure

37. What would improve cancer care access in your community? (Select all that apply)

More cancer specialists in underserved areas Free or low-cost screening programs Patient navigators to guide people through the system Transportation assistance Telehealth and virtual care options Culturally responsive care from providers who understand my background Community health workers and education programs Better insurance coverage for cancer treatment

SECTION 8: CANCER EDUCATION AND INFORMATION

38. Where do you get most of your cancer-related information? (Select all that apply)

39. How confident are you in your ability to understand your diagnosis and treatment options?

40. What topics would you like to learn more about? (Select all that apply)

41. What format do you prefer for cancer education? (Select all that apply)

In-person workshops or lunch and learn events Virtual webinars Short videos (under 10 minutes) Podcasts or radio shows Printed guides or brochures Social media posts and infographics One-on-one conversations with a patient navigator Email newsletters

SECTION 9: CONTACT INFORMATION (OPTIONAL)

Providing your contact information is completely optional. If you share it, we may reach out about future programs, events, or opportunities. Your information will never be sold or shared with third parties.

42. Name (optional)

43. Email address (optional)

44. Would you like to receive updates from The Olandus Foundation?

Yes, I want to stay connected No, thank you

THE POWER OF US

Community Survey 2026